Sickle Cell Disease Network Activities

The Sickle Cell Disease Network is a group of parents, adults, teens and children living with sickle cell disease.   The group also includes health care professionals who work with persons with sickle cell disease. 

The goal of the network is to offer persons with sickle cell disease and the families the opportunity to share their experiences, learn from others, as well as to get updates about the management, treatment and research for sickle cell disease. 

Current Network Groups include:

Adult Network Group:

The Adult Network Group is a support program for persons with sickle cell    disease who receive medical care from an adult care provider.  In addition to support, the group has an educational and networking function.                           

We believe in patient rights and the ability to exercise them.

• The group meets monthly
• On the first Thursday of each month
• In the city of Pasadena, CA
• At 7:00 pm

Meetings are informal and styled on a discussion format.  The group leader is Dr. Carolyn Rowley.  Dr. Rowley is a clinical psychologist and a person with sickle cell disease.

The contact person for the group is Peter Grams, MSW.  He is a staff member of the Sickle Cell Disease Foundation of California and can be reached at (310) 693-0247.

Persons with an interest or connected to someone who has sickle cell disease are also encouraged to attend.

Men's Group:

An informal gathering of men who have an interest in sickle cell disease.  We are open to all. 

If you have a child with sickle cell disease, if you are a sibling, relative or friend of someone with sickle cell disease and you want to exchange ideas or ask questions or hear how others are dealing with this issue as a male member of the family, then you have a reason to be here with us.

For meeting location or other information, please contact the SCDFC at (310) 693-0247.