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The Sickle Cell Disease Foundation of California has implemented its programs and
social services designed to meet the specific needs of individuals and families with
sickle cell disease. The Client and Social Service component of the SCDFC examines the
particular needs of families; assists with coping and adjusting to life with sickle cell
disease; and provides counseling, support and information beyond those of traditional
social service agencies.
Our social workers are trained to interact with individuals and families
on several different levels. We have a deep-seated commitment to raising the level of
education with regard to the disease and its manifestations. Assessments of family social
service needs and appropriate referrals are also established. Finally, there is the more
in-depth counseling done with particular families regarding their special concerns.
The following social services are available through the SCDFC:
| Case Management |
Transportation Assistance (limited) |
| Medical Referrals |
Holiday Giving |
| Community Resource Referrals |
Resource Center |
| Client Network Groups |
Client Advocacy |
| Carolyn Rowley, Ph.D.
  Today, thanks to medical advancements and early
detection, persons with sickle cell disease are living longer, healthier and more
productive lives. Individuals are now able to pursue professional and personal goals, plan
families and become instrumental in society.
Dr. Carolyn Rowley holds a Bachelor of Arts degree in Psychology from Loyola Marymount
University. She received her first Masters degree in Psychology from Loyola Marymount and
her second Masters in General Clinical Psychology from Southern Illinois University at
Carbondale. Dr. Rowley obtained her Doctorate degree in Child Clinical Psychology from
Southern Illinois University at Carbondale, and completed her training at the University
of Louisville Medical Center.
Currently, Dr. Rowley is pursuing a post-doctoral fellowship at Charles R. Drew
University of Science and Medicine in Los Angeles. |
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Clients and families of the Sickle Cell Disease Foundation of California may also be in
need of specialized programs not always available through other social service programs.
The core of our specialized programs are the support groups for parents, adults and teens
with sickle cell disease. Through the Sickle Cell Disease Network, we are able to focus
concerns expressed by parents, adults, teens and children with sickle cell disease.
Participants of the Sickle Cell Disease Network meet monthly with specific agendas
facilitated by the Foundation’s social worker, medical personnel and clients.
A very important component of the Sickle Cell Disease Network is the Family Education
Day. The Family Education Day is a 4-8 hour conference for individuals and families with
sickle cell disease. This activity gives the participants an opportunity to learn more
about sickle cell disease, as well as the chance to meet others with similar
experiences.
The Client & Social Services program was implemented in 1983. Its primary purpose
has been to provide a comfortable, relaxed atmosphere for persons with sickle cell disease
and their families where they may address concerns and express their emotions. Over the
years, several support services and activities have grown from the social service program.
While the overall goal has remained constant, the SCDFC is proud to implement innovative
programs geared specifically to meet our client's need.
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