Community Health Workers (CHWs) specialized in sickle cell disease are trained frontline public health professionals who provide culturally sensitive support, education, and advocacy. Their role bridges the gap between healthcare systems and the community, helping members navigate complex medical and social challenges.
COMMUNITY-BASED SERVICES
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Health Screening & Needs Assessments
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Individual and Family Support & Advocacy
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Sickle Cell Health Education
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Sickle Cell Healthcare Navigation
CLINIC-BASED SERVICES
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Connection to Specialized Sickle Cell Care Providers & Clinics
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Comprehensive Assessment and Care Planning
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Outreach, Engagement, and Health Promotion
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Enhanced Care Coordination
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Transitional Care Support
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Connection to Community Resources & Social Services
Community Health Worker Support Services
Specialized SCD
Community Health Workers
Health Navigation:
Provide SCDF members with information, training, referrals, & support.
Assists SCDF members in:
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Accessing appropriate primary and specialized health care.
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Understanding the health care system or engaging in their own care.
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Connecting to community resources necessary to promote a member’s health.
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Addressing health care barriers, including connecting to medical translation/interpretation, transportation services, or addressing health-related social needs.
Health Education:
Promote SCD Health and/or address barriers to physical and mental health care, including providing information or instruction on health topics.
Health education may include coaching and goal setting to improve SCDF Members’ health & support with the ability to self-manage their SCD.
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Fear of sickle cell pain coming at any time
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Fear of death and dying
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Concerns about being able to provide good care for a person with sickle cell disease