Vanguard News Group Download Article Ahmed via Unsplash By Keyasia Currie August 6, 2026 “I don’t want to go back to the hospital.” I’ve lost count of how many times a patient has said that to me. They didn’t say it because they weren’t in pain or because they didn’t need care, it was because they didn’t think anyone would believe them. Lately, I’m hearing that phrase less often. Sickle cell disease care is changing for the better, and there’s a specific reason for that: comm

OPINION - August 12, 2026 The Observer California’s statewide sickle cell clinic network now serves 1,100 adults and has reduced preventable hospitalizations by 20%, offering a model for coordinated, equitable care. For too long, living with sickle cell disease in California has meant carrying more than the burden of the disease itself. Families have faced severe chronic pain, limited treatment options, repeated hospitalizations, and difficult transitions from pediatric to ad

FOR IMMEDIATE RELEASE: July 3, 2026 CONTACT: Naty Alvarez (916) 826-7855 naty@perrycom.com (Ontario, CA) – Today, Mary Brown, President & CEO, Sickle Cell Disease Foundation, and Diane Nugent, MD, Founder & President, Center for Inherited Blood Disorders, issued the following statement in response to Governor Gavin Newsom signing the Budget Act of 2026 (AB 109), providing a $6 million appropriation in FY 2026-27 to the California Department of Public Health for Sickle Cell Ce

BY MARY E. BROWN MARCH 27, 2026

FOR IMMEDIATE RELEASE: June 19, 2026 CONTACT: Naty Alvarez (916) 826-7855 naty@perrycom.com (Ontario, CA) – Mary Brown, President and CEO of the Sickle Cell Disease Foundation, issued the following statement in recognition of World Sickle Cell Day. “Today is World Sickle Cell Day, a day to recognize the millions of people around the world living with sickle cell disease, as well as the families and caregivers who walk this journey with them. It's also a day to reflect on how

(Ontario, CA) – Mary Brown, President and CEO, the Sickle Cell Disease Foundation (SCDF), issued the following statement in response to S.721:The Sickle Cell Disease Comprehensive Care Act , introduced by Senator Cory Booker (D-NJ). The legislation would allow State Medicaid programs to provide comprehensive and coordinated care to individuals living with sickle cell disease through a home health model. “For decades, people living with sickle cell disease have relied on eme

The Social Security Administration (SSA) released a new publication to help individuals living with sickle cell disease understand and...

Exciting news! A new and improved Parent and Caregiver Handbook for Sickle Cell is available in English and Spanish. This comprehensive...

NEW YORK--(BUSINESS WIRE)-- Pfizer Inc. (NYSE: PFE) announced today that it is voluntarily withdrawing all lots of OXBRYTA ® (voxelotor)...

(Ontario, CA) – The Sickle Cell Disease Foundation (SCDF) is rallying communities, health care providers, and policymakers to recognize September as Sickle Cell Disease Awareness Month and use this time to address one of the most neglected health crises in America. Despite affecting more than 100,000 people in the U.S., particularly African American and Hispanic communities, sickle cell disease (SCD) remains critically underfunded, underserved, and misunderstood. “Sickle Cel

Despite cutting-edge treatments, many patients—mainly Black and brown—don’t even get basic support.

PAINFULLY AWARE: Understanding Sickle Cell and Its Impact on The African American Community

After living with sickle cell disease for 39 years, I’m both excited and skeptical about the newly approved gene therapies

December 8, 2023. Today the U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the...

The U.S.Food and Drug Administration (FDA)approvedNovartis’ Adakveo (crizanlizumab) to decrease the frequency of vaso-occlusive crises...

Oxbryta (voxelotor), a first sickle cell treatment that works to stop the sickling and destruction of red blood cells that mark this...

The Networking California for Sickle Cell Care Initiative (NCSCC) was developed through advocacy and stakeholder engagement supported by...